Cuando a la hija de Jacqueline Tafoya, Emma, \u200b\u200ble diagnosticaron varias complejidades m\u00e9dicas en el \u00fatero, incluida la extrofia clocal (OEIS), estaba nerviosa, asustada y se sent\u00eda completamente sola. Jacque y su esposo estaban aprensivos y asustados por lo que le deparar\u00eda en el futuro a su beb\u00e9.
Emma tuvo un comienzo dif\u00edcil, pas\u00f3 setenta y seis d\u00edas en la Unidad de Cuidado Intensivo Neonatal donde experiment\u00f3 muchas complicaciones m\u00e9dicas. Este fue un momento incre\u00edblemente estresante para la familia. Cuando Emma ten\u00eda casi un a\u00f1o, Jacque se acerc\u00f3 a Raising Special Kids en busca de apoyo y orientaci\u00f3n. Ella comparte: \u201cDespu\u00e9s de un a\u00f1o m\u00e1s o menos, me permit\u00ed sentir cosas nuevamente y ya no ser el robot sin emociones en el que me hab\u00eda convertido. Mi ansiedad y el trastorno de estr\u00e9s postraum\u00e1tico se hicieron reales en este momento. Sent\u00ed que nadie entend\u00eda por lo que estaba pasando hasta que me conectaron con Raising Special Kids\u201d.<\/p>\n\n\n\n
Debido al apoyo y la atenci\u00f3n que Jacque recibi\u00f3 de Raising Special Kids, se inspir\u00f3 para ser voluntaria de la organizaci\u00f3n. \u201cMe convert\u00ed en mentor y finalmente encontr\u00e9 mi lugar y mi gente. RSK me proporcion\u00f3 un sentido de comunidad. Pude ayudar a otros padres, lo que tambi\u00e9n me dio un sentido de identidad y prop\u00f3sito nuevamente. Me encanta ser una ama de casa criando a alguien con necesidades especiales, pero es solitario\u201d.<\/p>\n\n\n\n
Jacque ha sido padre l\u00edder durante varios a\u00f1os en Raising Special Kids y ha sido una gran fuente de apoyo para otras familias, ya que han necesitado esperanza y ayuda de un padre que entiende por lo que est\u00e1n pasando. Jacque est\u00e1 agradecida por la oportunidad de retribuir y ayudar a los dem\u00e1s. Jacque comparte: \u201cSin RSK, no habr\u00eda podido recuperarme y ser la mam\u00e1 osa luchadora en la que me he convertido. El apoyo que he recibido y las amistades que he hecho me han brindado una comunidad que me comprende. Ya no me siento perdido ni solo. Tengo una familia de padres y madres como yo, y ese sentimiento no tiene precio. Sin Raising Special Kids, no creo que estar\u00eda bien. Tener una tribu de padres con necesidades especiales ha hecho toda la diferencia en mi vida y en la vida de mi familia. Ya no me siento triste y sola, me siento apoyada y comprendida. \u00a1Estamos unidos para siempre, y eso es un sentimiento poderoso!\u201d<\/p>\n","protected":false},"excerpt":{"rendered":"
Cuando a la hija de Jacqueline Tafoya, Emma, \u200b\u200ble diagnosticaron varias complejidades m\u00e9dicas en el \u00fatero, incluida la extrofia clocal 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