{"id":9655,"date":"2024-05-21T07:59:29","date_gmt":"2024-05-21T14:59:29","guid":{"rendered":"https:\/\/raisingspecialkids.net\/?page_id=9655"},"modified":"2025-04-14T12:15:22","modified_gmt":"2025-04-14T19:15:22","slug":"sickle-cell-anemia","status":"publish","type":"page","link":"https:\/\/raisingspecialkids.net\/es\/resources\/newborn-screening\/sickle-cell-anemia\/","title":{"rendered":"Sickle Cell Anemia (Hb SS)"},"content":{"rendered":"\n

(SIK-uhl SEL uh-NEE-mee-uh)<\/em><\/p>\n\n\n\n

\"\"<\/figure>\n\n\n\n

If your baby\u2019s blood spot screening result for Sickle cell anemia (Hb SS) is out of range, your baby\u2019s healthcare provider will contact you. Together, you will discuss next steps and follow-up plans.<\/p>\n\n\n\n

False-positive<\/a> newborn screening results for this condition do occur. An out-of-range result may occur because the initial blood sample was too small or the test was performed too early. <\/p>\n\n\n\n

An out-of-range screening result does not <\/strong>mean that your baby definitely has Sickle cell anemia (Hb SS). It does<\/strong> mean that your baby needs more follow-up testing. Follow-up testing will involve checking your baby\u2019s blood sample for abnormally shaped red blood cells<\/a>. If your baby has Hb SS, they will have a large number of red blood cells that are sickle or crescent-shaped rather than donut-shaped. Clinical genetic testing for Hb SS is available and may be necessary to confirm the diagnosis.<\/p>\n\n\n\n

You should complete any recommended follow-up testing as soon as possible. Babies with this condition can have serious health problems in the first few months after birth if they are not <\/strong>diagnosed<\/strong><\/a> and treated quickly<\/strong>.<\/p>\n\n\n\n

Next Steps<\/strong><\/h5>\n\n\n\n

Parent-to-Parent Connection: <\/strong>After following up with your baby’s healthcare provider, you may want to speak with a parent whose child received an out-of-range screening result or has been diagnosed with Hb SS. If so, contact Raising Special Kids at 602-242-4366 or info@raisingspecialkids.org to request a parent-to-parent connection.<\/p>\n\n\n\n

Arizona Early Intervention Program: <\/strong>Because a diagnosis of Hb SS anemia may affect a baby’s development, they are often referred to the Arizona Early Intervention Program (AzEIP). If you haven’t heard from AzEIP or would like to learn more about the program, visit https:\/\/des.az.gov\/azeip<\/a>.<\/p>\n\n\n\n

Arizona Health Care Cost Containment System: <\/strong>AHCCCS is Arizona’s Medicaid program. If your baby is diagnosed with Hb SS they may be eligible for health coverage through AHCCCS at no cost to you.<\/p>\n\n\n\n

Arizona Long Term Care System<\/strong>: ALTCS benefits may be available if your baby is diagnosed with Hb SS. You can learn more about the program at https:\/\/www.azahcccs.gov\/Members\/GetCovered\/Categories\/nursinghome.html<\/a>.<\/p>\n\n\n\n

Resources<\/strong><\/h5>\n\n\n\n

Sickle Cell Connect:<\/strong> Family-focused, research-supported resources for parents and professionals https:\/\/www.sicklecellconnect.com\/<\/a><\/p>\n\n\n\n

Sickle Cell Disease Association of America<\/strong> This organization serves as the national voice for SCD working to resolve issues surrounding sickle cell disease and sickle cell trait. Since 1972, the organization has been on the forefront of improving the quality of health, life and services for individuals, families and communities affected by sickle cell disease and related conditions. https:\/\/www.sicklecelldisease.org<\/a><\/p>\n\n\n\n

Arizona Sickle Cell Association<\/strong> is a subsidiary of the Arizona Blood Alliance. They are dedicated to serving Arizonans with sickle cell disease through advocacy, education and community events. https:\/\/www.azbloodalliance.org\/azsicklecell<\/a>.<\/p>\n\n\n\n

Sickle Cell Foundation of Arizona <\/strong>serves those with sickle cell disease by providing needed resources, raising awareness and promoting education to individuals, the public, healthcare providers and students about its causes, prevention, treatment and cure. info<\/a> https:\/\/scfaz.org\/<\/a><\/p>\n\n\n\n

360\u00b0 SCD Hub\u2122 app<\/strong> is operated by the\u00a0Sickle Cell Foundation of Arizona<\/a>. Take control of your health with the Sickle Cell Foundation of Arizona’s free\u00a0app<\/a>. Users can learn about sickle cell disease, track their symptoms, connect with a supportive community, and access essential resources\u2014all in one place. To download the app, visit https:\/\/360scdhub.org\/<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

(SIK-uhl SEL uh-NEE-mee-uh) If your baby\u2019s blood spot screening result for Sickle cell anemia (Hb SS) is out of range, 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